Tag Archives: ohsu

Jan 31

COVID-19 VACCINE – DOSE 1

A few days ago, Mommy got a message from OHSU that said, because I was autistic and “medically fragile,” they were in Phase 1A for the Covid vaccine and to sign up for a big vaccine party at the airport.

So we drove up there and found lots of other people there, too.

We brought lots of snacks and I entertained myself by taking selfie videos.

After two and half hours, we could see the tent where Mommy and Daddy were getting their vaccine. I was just happy I wasn’t getting a poke!

Daddy got his first.

Then Mommy.

Then we waited for 15 minutes before they set us free.

They got cool Band-Aids, but I still don’t want one!

Dec 13

ROUTINE OHSU VISIT

I had a routine visit with my gastroenterologist and realized this wooden bead toy in the waiting area looks just like a roller coaster!

We were also visited by Groot and Captain America in the lobby!

Aug 20

DIETITIAN CHECK-IN

We’re squeezing in a whole bunch of appointments before I start school next week. And one of them was a visit with my dietitian at Doernbecher Children’s Hospital.

They have a statue of a dog outside that I’m now tall enough to ride!

I don’t remember what I was doing here, but it was probably pretty great.

We rode the tram, of course!

And after my appointment, I was really hungry and got my favorite food from the cafeteria – falafel wrap!

Mar 29

G-TUBE CHECKUP

It was time for my annual g-tube checkup at the Doernbecher Children’s Hospital. It had been so long since my last visit there!

I knew this would be an easy checkup, so I was actually really excited and played with all of the toys in the waiting area.

Then I just waited for the doctor to come in. (In case you’re wondering, I had already received quite a few compliments on my pants.)

Then, of course, I went on the tram. It’s tradition.

Apr 12

KIDNEY SUCCESS

I had a full day at Doernbecher Children’s Hospital to make sure my kidneys are still doing what they’re supposed to do. And they’re doing great! So great, in fact, that Dr. Rozansky said I don’t have to go back for another year. Woohoo!

Mar 9

OHSU FEEDING CLINIC

I went back to OHSU’s Feeding Clinic for the first time in a year and a half. We talked about all the cool things I’ve accomplished since then and what my therapy team can do to help me progress.

But first…I wanted to wander the halls and take the tram, of course!

I took a picture from the front of the tram, looking up Marquam Hill to the hospital.

At the bottom, I got to see a Portland Streetcar.

After my long appointment was done, I was all smiles! (These are my favorite seats in the waiting room.)

Sep 1

KIDNEY VISIT

I went back to Doernbecher to visit my nephrologist for a routine follow-up. Everything looks good! I’ll go back in six months to visit the gang.

Then I got to the important work of taking the tram! I was so excited, I had to run the whole way there.

Apr 6

EEG

Yesterday, I went to Doernbecher Children’s Hospital to get an EEG, which looks at my brain waves. I was not happy about it and wish to never ever do it again. BUT…when it was all done, Mommy gave me a surprise egg that had a car in it, which I immediately named BONE SHAKER.

EEG

EEG