Tag Archives: doernbecher children’s hospital

Aug 20

DIETITIAN CHECK-IN

We’re squeezing in a whole bunch of appointments before I start school next week. And one of them was a visit with my dietitian at Doernbecher Children’s Hospital.

They have a statue of a dog outside that I’m now tall enough to ride!

I don’t remember what I was doing here, but it was probably pretty great.

We rode the tram, of course!

And after my appointment, I was really hungry and got my favorite food from the cafeteria – falafel wrap!

Apr 18

TRAMMING AGAIN

I had my annual check-in at Doernbecher Children’s Hospital with my nephrologist, Dr. Rozansky. My kidneys look awesome!

Of course, I was most looking forward to riding the aerial tram. I don’t go to the hospital as often anymore, so it’s been a while since I’ve gone tramming.

Mar 29

G-TUBE CHECKUP

It was time for my annual g-tube checkup at the Doernbecher Children’s Hospital. It had been so long since my last visit there!

I knew this would be an easy checkup, so I was actually really excited and played with all of the toys in the waiting area.

Then I just waited for the doctor to come in. (In case you’re wondering, I had already received quite a few compliments on my pants.)

Then, of course, I went on the tram. It’s tradition.

Apr 12

KIDNEY SUCCESS

I had a full day at Doernbecher Children’s Hospital to make sure my kidneys are still doing what they’re supposed to do. And they’re doing great! So great, in fact, that Dr. Rozansky said I don’t have to go back for another year. Woohoo!

Mar 9

OHSU FEEDING CLINIC

I went back to OHSU’s Feeding Clinic for the first time in a year and a half. We talked about all the cool things I’ve accomplished since then and what my therapy team can do to help me progress.

But first…I wanted to wander the halls and take the tram, of course!

I took a picture from the front of the tram, looking up Marquam Hill to the hospital.

At the bottom, I got to see a Portland Streetcar.

After my long appointment was done, I was all smiles! (These are my favorite seats in the waiting room.)

Sep 1

KIDNEY VISIT

I went back to Doernbecher to visit my nephrologist for a routine follow-up. Everything looks good! I’ll go back in six months to visit the gang.

Then I got to the important work of taking the tram! I was so excited, I had to run the whole way there.

Apr 27

POST-OP APPOINTMENT

Yesterday, I went to Doernbecher Children’s Hospital for the first time in almost two months. Mommy learned how to change my g-tube button. I was a super brave kid even though it felt really weird to have it taken out and put back in.

The best part was that I got the new tram sticker!

Mar 4

G-TUBE SURGERY

I am now the proud owner of a g-tube. We checked in at Doernbecher Children’s Hospital at 6am on Thursday morning. By 9am, I was a tubie.

When I got to my hospital room, I practiced feeding my g-tube baby.

Daddy practiced feeding the g-tube baby, too.

That day and night, I tried to walk around, but it was not so fun. So I hung out on my bed and played with cars and planes.

The next day, I was afraid of walking around. So the nice ladies at the hospital lured me out with the promise of Legos and airplanes. After that, I just wanted to wander around and play in the playroom.

After I was discharged, we rode the tram!

Feb 14

KIDNEY UPDATE

Yesterday, I had a mega day at the hospital doing tests and follow-ups. But good news!

  • Blood work showed my creatinine levels totally normal.
  • My urine test came back completely normal.
  • An ultrasound showed no dilation in my kidneys.
  • And the entry sites of my nephrostomy tubes are healing nicely.

This means I don’t have to see my nephrologist again until the summer, and never have to see my urologist again! (Assuming, of course, that I continue to keep my kidneys healthy.)

AND I PEED IN A CUP. All of the nurses gave me high fives!

(Sorry, no photo. We were running around too much for Mommy to remember to take a picture. Miracles DO happen.)