I went with Daddy to my very first LEGOLab at the Oregon City Public Library. They bring Legos and you can make anything you want. It was super fun! I made a structure that I named, “Den.”





I went with Daddy to my very first LEGOLab at the Oregon City Public Library. They bring Legos and you can make anything you want. It was super fun! I made a structure that I named, “Den.”





Yesterday, I went to Doernbecher for an Upper GI x-ray and a consultation with the surgeon who will be placing my gastrostomy tube. During the x-ray, I got to see the pictures of barium going into my stomach. And I told the nurse my favorite airlines and she told me she’s going to Texas on Alaska Airlines!

It was a really icy day, but, of course, we still rode the tram. This was our view:

And here’s a picture I took of the tram from the 7th floor of Doernbecher!

After nearly a year of trying to avoid being made to go to the library, I went with Mommy to pick up a book for her and suddenly wanted to hang out for a while.




Yesterday, I went on a scavenger hunt with a bunch of other Portland kids at the Tryon Creek State Natural Area. My favorite thing to find on our hike were nurse logs!





Not sure how I lost my pants and one sock in feeding therapy yesterday…

The hospital has been giving me free tickets for the tram. I love giving my ticket to the tram conductor.
My most recent visit was to talk to the gastroenterologist about a g-tube. We’ll most likely be going through with it, but we have one more consultation with the pediatric surgeon. I’ve been feeling so well getting good nutrition and hydration through the NG tube. Everyone wants me to continue getting great nutrition and hydration to see what all I’m capable of!


We took Grandma and Grandpa to the Portland neighborhood of Nob Hill yesterday. While they and Daddy went into Blue Star Donuts, I had fun talking to people outside. Then I got out my camera for some good street shots.


Grandma and Grandpa are here visiting to celebrate my birthday. First, we went to Powell’s book store where I got a book about, duh, airplanes. After going out to lunch and driving the hills of Portland, we came home and I got birthday celebration #2! Grandma and Grandpa got me a cool car puzzle and my very own camera. I was taking pictures all over the place!










My 4-year stats!
Height: 38 in (8th percentile)
Weight: 35 lbs (43rd percentile)
Number of teeth: 20 (all done!)
Favorite foods: Goat cheese and milk chocolate
Favorite toys: Ummmm…let me think…AIRPLANES!!!
Favorite book: I like a lot of nonfiction books about airplanes and helicopters. But the one that started it all is “Man In The Air” by James Webster.
Favorite word: “Because…?”
Stuff I know: Airlines from all over the world and their paint designs throughout the years; the difference between a Boeing 747, Boeing 737, Airbus A380, Airbus A320, Bombardier Q400, and Cessna 182; sounds most of the letters make (I love spotting a silent E!)
Compare with my last checkup!
